Tuesday, February 19, 2008

i was just peed on...

in the midst of a feeding, i went to change LC and he sprayed me with a shower of pee. nice. the joys of motherhood. i think a little got in my hair.
doctor's appointment got changes til tomorrow but found out 2 things: 1) won't get lab results until end of this week/beginning of next, and 2) L-carnitine transport deficiency is WAY more serious than we ever imagined nor was this properly conveyed to us. i am sure the docs didn't want to freak us out in the event it was a false positive, but, in the event he does have it, they should have been a bit more serious. our doctor, dr. brock, called this afternoon after he had spoke with a genetic specialist at ucsf and i could tell by his tone that it was more serious than we anticipated from the other doctor who had reviewed it with us at the hospital. so, i looked it up on the web on a website that is more targeted toward doctors and the majority of the complications involve heart and central nerwous systems issues as well as weak skeletal muscle (which was the majority of what Dr. W mentioned at hospital). they specifically mentioned breast-fed infants stating some have sudden death, apnea, and cardiorespiratory attacks. needless to say, the next few days til we hear the news will be long ones.
it seems that life should deal you a big blow and give you a break for a while. don't you think? so, i think i am up to my fill on big blows when we lost our 2nd son in 2005 as a newborn to a rare parasite. then, we had enough other aggravating blows that i REALLY think we had our fill that year to last us a good bit of time - secondary effects of hurricane katrina (since most of my famiglia is still there), my dad almost died in a horse accident 3 weeks later, and then, our house which has been a constant source of aggravation up til the present since 2005. but, a day i've been waiting for since may 2005 has finally come (2 years later than expected), we are moving back in tomorrow! i am so excited. maybe tomorrow i won't be when i see what a construction disaster it is, but it's been a long-awaited day.
and, does anyone know how you get a 4 1/2 year old to listen to you? i could probably make a lot of money if i figured that one out. the jury's still out.
night.

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